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AUTISM NEWSLETTER APRIL 2022                                COMMENT

4/23/2022

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Care worsens The CQC's 2020 report said people with learning disabilities or autism were receiving "undignified and inhumane care"; 18 months on it says little progress has been made. More
 
Mind and body A family hopes to start a new charity to give young people with autism or learning disabilities the chance to take up martial arts. More
 
Meeting needs Recently released data from the Centers for Disease Control show childhood autism rates are at their highest level since the CDC began tracking data in 2000. About 2.3% of U.S. children. What are the priorities for support? More
 
Help in a box “Emergencies can be stressful for anyone. Then, when you add in a sensory processing disorder, they already don’t see and experience things in the same way we do,” A US firefighter has developed a sensory tool kit to help fire crews meet the needs of youngsters on the spectrum. More
 
Sibling support Having a younger brother with autism brings challenges. How can parents help? More

Right to work  An increasing number of companies are integrating neurodiverse individuals into the workplace as they recognize their growing number and the unique skills they bring to a variety of jobs. More
 
Food for thought A mum who has previously struggled to eat out with her autistic son has praised a restaurant for "going above and beyond" to help him. More
 
Autistic and unstoppable Sam Holness is an autistic endurance athlete. He's completed triathlons, an event consisting of swimming, cycling and running. He’s run numerous full 26-mile marathons and half marathons and he’s showing no signs of slowing down. More
 
Without the  mask Social psychologist Devon Price explains that masking is any attempt or strategy "to hide your disability." Price's new book, Unmasking Autism: Discovering the New Faces of Neurodiversity, explores masking, and how to "unmask" and live more freely.
 
Care for carers Carers are key members of the team around the person they support, but the role can significantly impact their life, health and wellbeing. Good quality, consistent support is vital to enable them to continue their caring role. More
 
Where are the women? Despite recent breakthroughs in research, young women with autism are still commonly overlooked by parents, educators and medical providers. More
 
Learning moment After learning she was autistic at 38, writer and podcaster Tara McMullin began reassessing what she needed to thrive at her job. More
 
Legally speaking Autism is not a mental health issue – David Crisp argues for a rethink on healthcare and mental health legislation. More

Minecraft safety Famallama is a family friendly whitelisted server for the neurodiverse, (those with Autism, ADHD, and Special Educational needs). More


















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AUTISM NEWSLETTER DECEMBER 2021                                  COMMENT

12/7/2021

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Secure silence The UK government has kept an autistic man in a secure hospital for half his life, and used the courts to silence his parents. More

Sleep study At the age of eight, Chase Mazurek has rarely had a good night's sleep. He has autism and ADHD and has trouble falling asleep, wakes in the night and gets up about 4.45am. His mother, Melanie, says it's been exhausting and has taken a toll on relationships and family life. More
 
Including us Much more must be done to make workplaces more inclusive for autistic people, according to Edinburgh-based Auticon, after it found that one in ten workers with the condition does not feel able to reveal their diagnosis at work. More
 
Getting a feeling For some of our children understanding emotions is particularly hard.  They may have communication challenges or struggle to read their own internal and physical signals.  Some of our children have high anxiety and therefore have a huge challenge when it comes to regulating their emotions. More
 
It’s about me ‘People said I was weak, lazy and fussy. I’m not – but I am autistic’. The late diagnosis of Melanie Sykes and Christine McGuinness came as no surprise to those who, like Sara Gibbs, have trodden the same path. More
 
Safe online Online dating can be an avenue for autistic people to meet new friends and potential romantic partners, but it brings with it some pretty serious dangers. People who you meet via online dating sites may not always be who they seem. More
 
Zayne’s world “At the beginning, life was really stressful and confusing, mixed with long waiting lists and no answers. We just wanted to be able to help Zayne the best we possibly could, but with very little knowledge and understanding of what he needed, it proved almost impossible to know what to do for the best.” More
 
Support for signing SignTown is an interactive web game built to help people to learn about sign language and Deaf culture. It uses machine learning to detect the user's ability to perform signs learned from the game. More
 
New numbers Autism rates are increasing yet again, according to new data from the Centers for Disease Control and Prevention which finds for the first time that more than 2% of American children have the developmental disability. More
 
Giving voice Sean Porter made an app for non-verbal children and those with autism like his brother to help them communicate. More
 
It shouldn’t happen to a vet Mental health researchers at the University of Nottingham School of Veterinary Medicine and Science are calling for participants for a study on how workplace stressors affect staff who live with autism. More
 
Capturing the spectrum Hoping to challenge misconceptions among the neurotypical, photographer Mary Berridge has spent more than five years capturing photographs of young people with autism. More
 
Right to write Nick McAllister found his words after a tough time looking for employment as an autistic writer. More
 
From science to support Working as a speech-language pathologist back in the early 2000s, Andrew Whitehouse saw one family after another struggling to get good care for their autistic children, some of them pursuing pricey, unproven therapies. More

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AUTISM NEWSLETTER NOVEMBER 2021                               COMMENT

11/16/2021

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Try this There have been plenty of newcomers welcomed to the sport of rugby at the Palace Grounds in Armagh over the past five weeks. This comes after local autism support group, More Than Words, teamed up with Rugby Cubz NI, who provide modified rugby activities for children with autism and additional needs. More

Gut news A collaborative Australian study has challenged the increasingly popular theory that gut health drives autism and rejected the use of fad diets and so-called therapies such as faecal transplants. More

Seeking acceptance People on the autism spectrum often face discrimination and other challenges in everyday life. In Bulgaria, activists are working to raise awareness and reduce stigma. More
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Pandemic problems For adults and children on the autism spectrum, getting a COVID-19 vaccine is easier said than done. More

Autistic images When photographer Mary Berridge’s son was diagnosed with Asperger’s, she began to see his world in a new light. She set out to capture a series of everyday – and exceptional – stories, one image at a time. More

That’s our business  In this podcast Toni Boucher (author and autistic self-advocate) describes her “AUntrepreneur” programme which helps young adults launch their own businesses. More

Sensory search Since sensory differences became part of the diagnostic criteria for autism in 2013, an increasing number of autism researchers have been drawn to the thalamus. What is it and what does it have to do with autism? More

Meeting Melanie “There’s a sense of relief about it and a sense of mourning. Not because I don’t want to be who I am, it’s that I wish I’d known sooner so I could have understood exactly why things were rolling the way they were rolling". More

Access to work An autistic woman said her experience of work was traumatising and more consideration was needed for neurodiverse employees. More



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October 25th, 2021

10/25/2021

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Not a crime Listen to Tom Oliver’s TED Talk on why autistic people are caught up in the justice system. More
 
Recruitment fair? There’s no doubt, that for large employers, high volume recruiting is a useful tool but it’s also true that one size doesn’t fit all, and nowhere is that more painfully obvious than with job applicants with conditions such as autism, ADHD or Tourette’s Syndrome. More
 
Media mess up Articles on TV and in the print media can be damaging! Autism can’t be prevented, nor can it be cured. More
 
Yes to amazing Sesame Workshop has announced its expansion of the ‘Sesame Street and Autism: See Amazing in All Children’ initiative with new resources More
 
Sensory salad “As a child my mum thought I was deaf and blind”. Paul Isaacs explains some of sensory effects of his autism. More
 
You get me? New research suggests that children with autism struggle with the feelings of others because they might not use context to identify underlying emotions. More
 
Seeing like a child “My toddler loves her autistic sister — and has helped me challenge my own unconscious prejudices.” More
 
Silver screen spectrum Looking WITH autism Sara Wheeler discusses autism in the movies. More
 
Empathy wins A nurse who created a Covid-19 vaccine clinic for people with learning disabilities and autism has received national recognition. Rebecca Crossley devised the sensory-friendly space for patients who may find syringes, PPE and a busy, noisy clinic daunting. More
 
Think autism “When I was twelve years old, I suddenly learned to think, all at once, on a single day. Before that day almost no one would have thought that I would ever understand the world around me”. Dan Bergmann on his autism, and a breakthrough lesson. More
 
Autistic access Since the pandemic, more of us than ever are seeking out green spaces. What can National Parks do to make the beauty of nature enjoyable and safe? More
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AUTISM NEWSLETTER SEPTEMBER 2021                               COMMENT

9/8/2021

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​iPhones and autism Apple are reportedly working on an algorithm that will work with the camera in an iPhone to detect autism in children. More

Sibling story "I left a dream job to be closer to my autistic twin. The pandemic has forced many of us to rethink our lives, not least of which is how we work. For me, it meant returning home". More

Mental health New research highlights the quality of life and mental health issues of adults with autism More

Strength of the spectrum Daniel Sobel asks what would happen if we shifted our mindset and attitude – from thinking of the barriers of SEN to considering the strengths and skills that SEN can give students. More

Universities meet challenge Universities are becoming more autism-friendly with staff receiving training in autism, specific calm spaces created on campuses and advice and videos for autistic students. More

High fives for autism A mum has written an emotional letter to an Asda in Wigan, thanking a member of staff for his act of kindness towards her five-year-old son  with autism. More

Play help A mum from Croydon is speaking out as she seeks better support for autistic kids outside of school. Neve Knight said that while there are options to keep children entertained and active in Croydon during the day, precious few offer adequate support for SEN kids with specific conditions such as her five-year-old son Brody's autism and ADHD. More

Finding me “Dinosaurs didn’t only make our boy happy, they gave us a window into Ted’s world." ​How dinosaurs have transformed the life of Ted, a little boy with autism. More

Accessible art An art exhibit in Edmonton looked a little different this month, the lights were dimmed and the music lowered to provide a sensory-friendly experience. The small changes made a big difference for families with autistic children. More



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AUTISM NEWSLETTER AUGUST 2021                                           COMMENT

8/11/2021

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 of injusti
Rebel on the spectrum ‘People like me have a very aggravated sense of injustice’ More

Strategic intent England has a new autism strategy. Five things you need to know about the Government’s new autism strategy for England​. More

Tackling tough Covid, fostering, autism and football – midfielder Shaun Byrne opens up on difficult 10 days with the virus. More

​Ways to work A foundation is helping people on the autistic spectrum gain qualifications and jobs in the IT sector as software testers. More

Finding each other Writer Joanne Limburg diagnosed with autism at 42 reflects on motherhood. More

Hidden histories Over the past two decades, our cultural understanding of autism and what it means to be autistic has grown - though we have a long way to go. But there are entire generations of people who grew up when the popular conception of autism was a far cry from how it’s now understood. More

Thinking of others Cameron McIntosh has worked for weeks by himself to improve Dundonald — cleaning up litter, broken glass and dog poo. More

Holiday reading: The Passionate Mind In entirely accessible terms, Wendy Lawson lays out her groundbreaking theory of Single Attention and Associated Cognition in Autism (SAACA), an approach that explains autism in terms of the unique learning style of individuals on the autism spectrum. More

Reel life A Cumbrian filmmaker is preparing to show off a new film inspired by her experiences with neurodivergency. Sophie Broadgate asked women and non-binary people with autism to contribute to the film where their experiences will be shared and explored. More


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AUTISM NEWSLETTER   MAY 2021                                                 COMMENT

5/10/2021

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Teachers go free The Autism Workroom is a new in-depth online course for anyone who works in a school or other childcare setting. There a three, free modules to try. More

Working future Bounce Back is for autistic Londoners who recently became unemployed or have worked previously. Participants will have access to courses, workshops and one to one support to develop action plans and achieve their goals, with the aim of gaining employment or further training. More

The eyes have it A mobile phone app that tracks a toddler’s gaze as she watches short videos can distinguish between children who later receive an autism diagnosis and those who do not with 90 percent accuracy, according to a study. More

Autism at the Oscars Many Oscar buffs have noted the historical facet of Anthony Hopkins' win, but the 83-year-old also achieved another, quieter milestone: He is apparently the first openly autistic actor to win. Hopkins revealed in 2017 that he has been diagnosed with Asperger’s syndrome. More

Masking and Mental Health The vast majority of women with autism have a history of “masking,” or camouflaging, their symptoms. They do this in order to make and maintain friendships, fit in at school and higher education, and pass as “normal” in a variety of social contexts, including the workplace. More

School for the senses Sensory rooms, trampolines and gardens: a new project aims to support schools in creating a more inclusive culture. More

Further Education 3 lessons Covid taught us about learners with autism. More

Different strokes Australian rower Chris Morgan never let his autism get in the way of his Olympic dream. He competed at the Beijing 2008 Games, took home a bronze medal at London 2012 and represented Australia at the Rio 2016 Olympics."If I had a neurotypical brain I wouldn't have achieved what I have," More

Sibling support Having a sibling may help autistic people navigate their daily lives better, according to a new unpublished study. More

Just me So often I am judged on behaviours outside of my control. I will be called rude for not being able to talk, difficult for my sensory needs and overreacting for my inability to regulate my emotions. More

From advocacy to an app While growing up with her autistic sister, Amanda, Celest Austin grew to appreciate her sister’s way of thinking. Dr. Austin was alarmed how most resources available did not nurture her sister’s unique way of thinking but instead tried to reprogram her with products and services labeled as “cures” and “treatments”.  More


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AUTISM NEWSLETTER APRIL 2021                                   COMMENT

4/15/2021

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At a difficult age Researchers are just beginning to learn what happens in the brains of autistic children during adolescence to explain their unique social, cognitive and emotional challenges More

Financial fight "You're literally having to fight people to get what you know your child is actually legally entitled to," Anna Geldard spent £20,000 fighting for the Education, Health and Social Care Plan (EHCP) her child is entitled to. More

Super supporters Volunteers and medics have been praised for the way they helped a woman with learning difficulties get her first vaccination jab. Lucie Willis has autism and epilepsy and her parents Helen and Mark were apprehensive about how she would cope with going to York's vaccination centre More

More autism Autism is more common in children in England than previously thought –  a study at University of Cambridge also found that prevalence numbers varied by ethnicity and levels of deprivation More

Video sharing Bristol group Autism Independence has launched a series of multi-language short films to dispel myths about autism in the Somali community, "We hope that our films, particularly the version in the Somali language, can reach many more families and reassure parents." More

Sensory shopping "As an autistic, I always need to take my disability into account when I make consumer choices. Something a neurotypical person may not even notice—a beep, a buzz, a scratchy tag—can overwhelm my senses". More

Sounds good Many children with autism struggle to find the words to express how they feel. But when it comes to music, it’s an entirely different situation. How can teachers incorporate music in everyday lessons? More

Positive pathways What do we know about encouraging employment and thereby fostering independence among autistic young adults? A team in Cambridge, MA think they have a few answers More

Help in mind 2020 hasn’t been an easy year for teens. Covid-19, exam cancellations and school closures have made it the most disrupted school year in 75 years. The folks at myTutor have some ideas about how parents can equip their teens with tactics and tips to cope with whatever life throws at them. More

Ideas please Parenting any child is challenging, but the joys and feelings that come with parenting a child with special needs are unique. Wondermoms is a great source of advice and ideas. More


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AUTISM NEWSLETTER JANUARY 2021                                   COMMENT

1/11/2021

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The reason why... A new film is being heralded by some as a ​huge leap forward for autism representation More

Help early "It would've changed my life": New autism screening method hopes to reduce age of diagnosis and address barriers More

And finally "I was diagnosed with autism in my 70s and finally found out I wasn't just bad, mad, or sad." Emily Lovergrove's father told her she had 'never been normal' and the one school friend she had bullied her but she wasn't given any kind of formal diagnosis until she was 71. More

Strong bonds Researchers have been working together for the past several years to develop a better understanding of autism through a study that challenged them to fundamentally reimagine the concepts associated with social connection. More

Medical help An autistic man has described how he was conscious throughout surgery after the anaesthetic did not work. Corey Burke is working to train medical professionals to better understand people with a cognitive disability. More

Me too An Oxfordshire politician has shared the journey which led her to be diagnosed with autism as an adult. the diagnosis came after she began to research the ways the condition manifests in women differently to men. Now she wants to use her public facing role as a local councillor living with autism to raise awareness of the condition, and the different ways people experience it. More

Uncertain times "My life has been filled with uncertainty for a long time, but my son has helped me stay flexible, adjust expectations and persevere. The crisis isn’t abating anytime soon. Yet surprisingly, the uncertainty and angst feel familiar. I know this road. As a parent of a child with special needs, I’ve been traveling it a long time." More

Let's work Gordon Douglas spent most of his 20s on welfare, struggling to find an employer who would look past his "differences" and give him a break. The 34-year-old battled his way through job application after job application but, despite being highly qualified and intelligent, he often fell out of contention when it came to face-to-face interviews. More

Stay alert A free initiative launched this year to make it easier for people with autism and learning disabilities to navigate stressful situations is proving to be a huge success. The Autism Alert Cards enable police and other emergency service workers to communicate with autistic residents more effectively, helping those on the autism spectrum feel comfortable in difficult or frightening situations. More
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AUTISM NEWSLETTER OCOBER 2020                                        COMMENT

10/23/2020

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Through An Autistic Eye Autistic photographer inspires other young people with special needs to take photos as he prepares to publish debut book  More 

Life in lockdown A mother and son have written an illustrated book during lockdown to help explain autism to others. More

Sounds different Unlike typical toddlers, those with autism may tend not to share experiences involving sound — dancing to music with their parents, for example, or directing a parent’s attention toward a cat’s meow — according to a new study More

Good read Get hold of Sarah Kurchak's ‘autiebiography’ (an autobiography written by an autistic person) which, though it may not reflect the experiences of everyone on the spectrum, is sure to resonate with many More

Getting in the door Being diagnosed with autism at the age of 33 was a watershed moment for Josh McKeiver. - "That was a huge relief. I cried. I'd never cried so much in my life, over days." Employment however is another hurdle. More

Care changes needed Too many people with learning disabilities or autism are receiving "undignified and inhumane care" in specialist hospitals, a care regulator has found. More

Autism in the family "What [autism] means for us, in my family, is that we experience external stimuli as blasts of information. When we are out in public, the smells, the sights, the sounds and the people can all merge together and become completely overwhelming." More
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COPYRIGHT POSITIVE ABOUT AUTISM LTD 2022                                                                        
  • Home
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    • ADI-R >
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