<![CDATA[Positive About Autism™ - Autism news]]>Fri, 22 May 2020 19:43:49 +0100Weebly<![CDATA[AUTISM NEWSLETTER MAY 2020                                                 COMMENT]]>Fri, 22 May 2020 10:11:46 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-may-2020-commentResearch needs you University of York researchers need your help with a project looking at experiences of bullying in childhood in autistic adults. More
... why not explore the topic of the role of the autistic voice in research a little further? More

Safe schooling Are schools able to offer safe and suitable provision for autistic children on an individual basis during 'lockdown'? More

Virtual understanding US law enforcement professionals are utilising virtual reality to gain insight into autistic experience. More

Distraction reaction Autistic people may have trouble tuning out distractions. Researchers at Carnegie Mellon University in Pittsburgh believe this may account for some of the problems with sensory sensitivity and sensory processing experienced by individuals on the spectrum. More

Wired for success Auticon, an  IT company, sees the benefits of having a majority-autistic workforce. "Our hybrid onsite and offsite teams utilise the cognitive benefits of autism to provide the sustained concentration and analytical mindset that makes us wired for success". More

Autism advocate In 2017, Daisy Shearer, then a 21-year-old physics major at the University of Surrey in the UK, was diagnosed with autism spectrum disorder (ASD). In retrospect, the diagnosis made sense. It explained the sensory overload and panic attacks during exams, for example, and the trouble she had maintaining friendships. More

Lockdown life Robyn Steward and Jamie Knight, presenters of the podcast '1800 Seconds on Autism', reveal what’s been going on in their lives during lockdown. From the pasta dish Jamie has eaten every day for five years no longer being available at the supermarket, through to Robyn’s solo trip to hospital, a notoriously noisy and discombobulating place.  More

Eating and autism Is there a relationship between eating disorders and autism? Children with autistic traits are more likely than their peers to develop an eating disorder, according to a new UCL-led study. More

Siblings stick together Why not sign up for a free siblings webinar? Siblings, parents, and other caregivers can participate in this series, which will be the 2nd Tuesday each month. Next one is June 9th. More

<![CDATA[AUTISM NEWSLETTER APRIL 2020                                              COMMENT]]>Wed, 22 Apr 2020 09:22:01 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-april-2020-commentWe're hiring. Badly! Read about William's experiences of interviews (and what's wrong with the way most firms do them). A great insight into how autistic job seekers are discriminated against. More

That's right "The rights of persons with autism must be taken into account in efforts to address the COVID-19 coronavirus", UN Secretary-General More

Family and autism "When my son was diagnosed, I was told the condition was hereditary. Suddenly my late mother’s ‘eccentric, bossy’ personality began to make sense" More

Diagnosing 'different' Two women explain the reality of going through life feeling 'different' to their peers but without anyone ever being able to explain why More

Quality improvement required Autistic children and adults report poor physical and mental health and quality of life compared with the general population, according to a new survey More

Finding a different 'normal' "I have been spending so much time trying to force him to be 'normal' — to follow the standard milestones for child development. It never occurred to me to think he was autistic. A month ago I didn’t even really know what that meant." Read one mother's story More

Coping with confinement 11-year-old Elliott gives other autistic kids his lockdown tips More

Trouble with transition Autistic young people  in transition  are more likely to have active medical needs and require a healthcare team that is familiar with autism More

Time to talk When Meta Auden realised her daughter disliked certain fabrics and zips, she began to make bespoke items — and ended up launching her own firm. Talking to her teen during this crisis has also given her invaluable tips for parents More

What planet? The world has lost a great autism advocate, writer and all round wit. PJ Hughes will be sadly missed. Celebrate his life with the book Me and Planet Weirdo More]]>
<![CDATA[AUTISM NEWSLETTER MARCH 2020                                          COMMENT]]>Sat, 21 Mar 2020 11:23:10 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-march-2020-commentBig noise A new study may explain why people with autism are often highly sensitive to light and noise. More

Diagnosis and me ​"My rule-following autistic brain wouldn’t allow me to think of myself as really autistic until someone officially diagnosed me as such" More

Stop with the stereotyping These days, it seems fashionable to speculate about whether or not someone is on the autistic spectrum. Is this acceptable? More

Socially speaking A number of myths about autistic people abound. It's a great myth that autistic people lack empathy. However, the more you get to know an autistic person, the more you realise just how caring they can be. More

That's accepted We are approaching April, Autism Awareness Month.  Please do not be fooled. Awareness is not the same as acceptance and inclusion. More

Guide to 'me' When Dr Camilla Pang was eight, she asked her mum if there was an instruction manual on how to be a human. She was sick of getting things 'wrong' and being told that her behaviour wasn’t 'normal'. She wanted, above everything, to feel like she fitted in. More

Drawing on autism A teenage autistic author published her new comic to show those with autism they are not alone More

Describing different For artist and writer Charlotte Amelia Poe, 30, every day feels like a walk across a frozen pond. “It’s how it’s always been,” she explains. “You’re trying to navigate it and stay safe, but you’re aware that at any moment the ice is likely to crack, and at that point you will sink into the water.” More

Times of trouble With the current covid19 virus spreading anxiety and uncertainty in the autism community, why not send this newsletter to someone who might just need some positivity right now. Subscription link

<![CDATA[AUTISM NEWSLETTER FEBRUARY 2020                                    COMMENT]]>Thu, 27 Feb 2020 09:33:45 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-february-2020-commentDiagnosis reaction "She asked how I felt about the news, and I couldn’t speak; I took a moment to catch my breath and say, “Shocked.” I’m not sure why I said that, as I wasn’t — but the relief I felt was unreal. I had waited for what felt like forever to hear those words" More

Let's talk work As many as 10,000 young people with autism could gain work placements over the next two years, thanks to a sponsorship deal with telecoms company TalkTalk. More

Knowledge is power Kate McMurdo decided to arm herself with some legal skills when Lewis was diagnosed with autism aged four. After she struggled to find a suitable school for Lewis, she used her legal skills and secured funding for a place at an independent school. More

Tough Transition “Falling off the cliff” is the term often used by worried parents and family members when young adults with autism and other developmental differences turn 18. More

That's Super The Community Integrated Care Learning Disability Super League gives people with learning disabilities and autism the chance to live their dreams as rugby league stars, playing a specially adapted version of the sport for the clubs that they love.  Now they are award winners! More

Seeing signs Schools are failing to spot ADHD and autism, which could be contributing to a rise in exclusions, an alternative education provider has said. Kelly Rowlands, who runs schools for excluded children, said seven out of nine of her pupils arrived with undiagnosed neurodiversity issues. More

Autism explained It's never easy but Robyn Steward explains autism, and all the terms that go with it better than most. Listen to a podcast with Robyn. More

<![CDATA[AUTISM NEWSLETTER JANUARY 2020                                     COMMENT]]>Sun, 19 Jan 2020 10:50:15 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-january-2020-commentGood guidance This quick guide, which is based on research evidence, supports social workers to work with each person to develop a personalised plan, based on an accurate picture of their strengths, wishes and needs, including any sensory differences. More

Questioning PANDAS Some scientists say an immune condition called PANDAS affects as many as 1 in 200 children who have traits similar to those of autism. But many experts contest that figure — and even the condition’s very existence. More

Autism into adulthood A recent study explored the experiences of a number of late-diagnosed adults, who reported feeling alien and isolated, and who were aware of not fitting in (without understanding why) before they were identified as autistic. More

Don't use B-Word "For a while it was the word “autism” itself, or as I liked to call it “the A-word.” I was afraid of what I didn’t understand, so I preferred we not speak the word at all". More

Why the wait? Children are still waiting far too long for a diagnosis and their families are left unsupported during the wait for up to three years. More

One Mums' List Kacie learned five important lessons for her daughter, partner and family. She'd like to pass them on. More

Future's bright So often it's autistic individuals who, with their passion, determination and thinking differences are taking on the challenge of securing the planet's future. Dirk van Meer, a student at Eindhoven University of Technology and is leading a project on recovering metals normally lost to landfill. More

<![CDATA[AUTISM NEWSLETTER DECEMBER 2019                           COMMENT]]>Mon, 16 Dec 2019 13:54:37 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-december-2019-commentSensory clues Studies of the sensory system could provide unique insight into brain differences in autism More

Damaging wait New data suggests some NHS patients thought to have autism waited over 19 weeks for their first mental health appointments. Patients at 10 out of 25 English health trusts waited an average of 137 days or more following referral, against a target of 91 days, in spring 2018. More

Funny thing about autism Comedian Joe Wells talks about the one time in his life that making eye contact with another human being wasn't uncomfortable. Recently diagnosed as autistic, he also explains why he has to block out men's voices by playing loud music in his headphones.More

Get visual People on the autism spectrum sometimes learn best using visual supports rather than through auditory input alone. Being 'shown' instead of 'told', helps the person retain and process information. More

Autism, art and achievement Five years ago, Kitty Kaur was diagnosed with autism. She said she had been struggling to cope with "the outside world" but found creating art made her feel she could achieve anything. More

Thinking differently "People don’t often understand our choices and decisions. Often we make different choices than parents with children who don’t have disabilities. We shouldn’t need to justify our decisions to someone else" Read Calleen's take on family life. More

Asking autism Kathy Divine describes herself as a “visionpreneuer” who shares a positive vision for global ethical leadership through her writing and books. On top of that, she’s a qualified dog massage therapist, a coach for aspiring authors and a keen drummer. More

Give the gift of the year Stuck for what to get someone? Why not sign them up for this newsletter? A year of news and views from the world of autism. Amazing. More

<![CDATA[AUTISM NEWSLETTER NOVEMBER 2019                                  COMMENT]]>Sun, 17 Nov 2019 17:29:11 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-november-2019-commentAutistic and funny with it Comedian Hannah Gadsby - how an autism diagnosis changed her life More

At home with autism Why do so many parents home-school their children with autism? Ofsted’s recent report says that special educational needs, medical, behavioural or other well-being needs were the main reasons behind such a move for parents and their children More

Autistic mother and daughter “She’s still the same girl she was before she got diagnosed,” I said, tears dripping down my face. “And I’m still the same woman you married, too.” More

Autism at work Our brains don’t all work the same way. One New York-based software company sees that as a competitive advantage. More

Need is different from want "My eldest autistic son lives with daily and debilitating levels of anxiety, most probably on account of engaging with an intolerable and inflexible neurotypical world which bombards him endlessly with noise and communication that is not easy for him to decipher." Read about the need for self-regulation activities and the dangers of using them as rewards. More

Order, order! Structure and security are important to all people.  They  are basic human needs. But being autistic often means that these needs are even more critical. More

Cost of camouflaging "Masking or camouflaging is something just about everybody does on a daily basis. Depending on where you are or who you are with, you act a certain way. People with autism have to do this on a much deeper level. We live in a world that was not designed for us, so we learn to 'hide' the things that make us seem different." More

Picture power SymbolWorld is a website created by Widgit Software specifically for symbol users. It has material for all ages and includes news, personal contributions, stories and learning materials. More

Which way with PDA? The Pathological Demand Avoidance profile of autism might need an adapted approach and a different set of tools. More

Seeing sound, hearing colours What can synaesthesia tell us about autism? More

Story of autism and art Kambel Smith was diagnosed with autism when he was eight years old. Over the past ten years, his father has engaged him in daily improvised storytelling, encouraging Smith to participate in the created narrative by making drawings and sculpture. The results are visible in galleries around the globe. More

<![CDATA[AUTISM NEWSLETTER OCTOBER 2019                                        COMMENT]]>Mon, 07 Oct 2019 17:52:54 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-october-2019-commentThe Success Spectrum David Hall  talks about  maximizing the potential of people with autism, the importance of advocacy by people that are actually on the spectrum, and how a third party can sometimes help discover interests. More

Harmful therapy? Applied Behavior Analysis has always provoked strong feelings in both it's supporters and critics. Aileen Herlinda Sandoval-Norton asks, 'How much compliance is too much compliance: Is long-term ABA therapy abuse?' More

Find out and be fair That's the message in Government-commissioned guidance for social workers in practice with autistic adults. Social workers must access specialist training and improve their practice. More

Food for thought A recent study has found Autistic children are 5 times as likely as those with other developmental conditions and 15 times as likely as their typical peers to have unusual food preferences. Why? More

Help for hidden disabilities Heathrow airport has introduced a new scheme to help passengers with hidden disabilities indicate that they may need assistance. More

Play safe Autcraft uses Minecraft to do four key things for autistic children: it gives them structure, creates a safe social space, lets them filter their experience in various ways, and helps them unleash their imaginations. More

Finding your own autism Paul Sandford was teaching students who have autism when he decided to carry out some research into how he could best support them. The more he delved into the subject, the more he thought the symptoms sounded strangely familiar - leading to Paul being diagnosed with autism at the age of 42. More

Keeping calm and carrying on Some autistic people find comfort in specific objects. What happens when they’re not available anymore? More

Capturing autism Winner of the Wellcome Photography Prize Erin Lefevre collaborated with her brother to produce a photographic series that documents the challenges and joys of his life with autism. More

Problem or not? The words 'problem behaviour' and autism often appear in the same sentence but are 'problems' always, well, problems? Check out a great new book for teachers More
<![CDATA[AUTISM NEWSLETTER SEPT 2019                                           COMMENT]]>Sun, 15 Sep 2019 17:49:32 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-sept-2019-comment

Tough to talk about? Listen to Amy Gravino, autism advocate, on what parents can say about sex and relationships to autistic youngsters. More

B is for bullied A study has found autistic children are more likely to be victims of bullying. Researchers call for more resources to help parents deal with bullying behaviours in home and school. More

Rude! "A recent altercation I had with a flight attendant exemplified just how little most people understand about neurological diversity", Laura McKenna (Mum to Ian who has Aspergers). More

Touching The inability to tolerate light touch is a telltale feature of autism. What causes it? More

Design for life How can autism-friendly architecture change autistic children’s lives? How do we design/change schools for children with autism. More

Sad situation Autistic people are four times as likely to experience depression over the course of their lives as their neurotypical peers. Yet researchers know little about why, or how best to help. More

A big question Researchers are taking a multi-pronged approach to understanding a great mystery of autism: Why are four times more boys diagnosed with the condition than girls? The lack of information about autism in girls means many are never diagnosed and miss out on support. More

Right to work (without discrimination) A Wales Trade Union Congress survey showed only 16% of autistic adults were in full-time paid work. The organisation also said it was dealing with cases where staff were not getting reasonable adaptations in the workplace, required under the Equality Act. More

Teachers must train Parents of autistic children have protested at Stormont over the lack of mandatory training on autism for teachers in Northern Ireland. More than 10,000 people have signed a petition calling for improvements to be made in schools. More

<![CDATA[AUTISM NEWSLETTER JULY 2019                                                               COMMENT]]>Tue, 02 Jul 2019 09:56:36 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-july-2019-commentBehaviour change Yep, it's time we changed the behaviour of bullies in school. Watch this wonderful video from Robbie. Self advocacy in action. More

Safe house “A place where you don’t need to translate yourself” Inside Felicity House, a New York social club for women with autism. More

Romance is fine Autism self advocate Amy Gravino on what parents should know about spectrum dating More

That's funny “It’s a huge myth that people with A.S.D. don’t understand or are not interested in humor,” Yep, people with autism not only get jokes - they right them too! More

Wrong label It may be that children given the ‘high functioning autism’ label are not just presumed to have better functioning than they really do, but they actually have far greater challenges with everyday skills than the label would suggest More

Achieve with autism 'It's not a weakness or a liability' - the words of Callum Brazzo. Callum urges folk with autism to bring positive energy and say to everyone "we can do this", be sociable people, show our talents and, no matter what the challenges are, we can come out of the other side More

Can't wait to use this app This looks like a really good app to help youngsters master the art of waiting. Not easy for those on the spectrum (and those that aren't)! More