<![CDATA[Positive About Autism™ - Autism news]]>Mon, 11 Jan 2021 22:24:45 +0000Weebly<![CDATA[AUTISM NEWSLETTER JANUARY 2021                                   COMMENT]]>Mon, 11 Jan 2021 12:53:05 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-january-2021-commentThe reason why... A new film is being heralded by some as a ​huge leap forward for autism representation More

Help early "It would've changed my life": New autism screening method hopes to reduce age of diagnosis and address barriers More

And finally "I was diagnosed with autism in my 70s and finally found out I wasn't just bad, mad, or sad." Emily Lovergrove's father told her she had 'never been normal' and the one school friend she had bullied her but she wasn't given any kind of formal diagnosis until she was 71. More

Strong bonds Researchers have been working together for the past several years to develop a better understanding of autism through a study that challenged them to fundamentally reimagine the concepts associated with social connection. More

Medical help An autistic man has described how he was conscious throughout surgery after the anaesthetic did not work. Corey Burke is working to train medical professionals to better understand people with a cognitive disability. More

Me too An Oxfordshire politician has shared the journey which led her to be diagnosed with autism as an adult. the diagnosis came after she began to research the ways the condition manifests in women differently to men. Now she wants to use her public facing role as a local councillor living with autism to raise awareness of the condition, and the different ways people experience it. More

Uncertain times "My life has been filled with uncertainty for a long time, but my son has helped me stay flexible, adjust expectations and persevere. The crisis isn’t abating anytime soon. Yet surprisingly, the uncertainty and angst feel familiar. I know this road. As a parent of a child with special needs, I’ve been traveling it a long time." More

Let's work Gordon Douglas spent most of his 20s on welfare, struggling to find an employer who would look past his "differences" and give him a break. The 34-year-old battled his way through job application after job application but, despite being highly qualified and intelligent, he often fell out of contention when it came to face-to-face interviews. More

Stay alert A free initiative launched this year to make it easier for people with autism and learning disabilities to navigate stressful situations is proving to be a huge success. The Autism Alert Cards enable police and other emergency service workers to communicate with autistic residents more effectively, helping those on the autism spectrum feel comfortable in difficult or frightening situations. More]]>
<![CDATA[AUTISM NEWSLETTER DECEMBER 2020                                  COMMENT]]>Tue, 15 Dec 2020 09:02:09 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-december-2020-comment
Damaging delays
 New research has shown that more than 128,000 children and their families risk being ‘forgotten’ by the system as lockdown causes delays in autism diagnosis.​ More

Sound and sensitivity A tiny fish is helping scientists understand how the human brain processes sound, while also giving insight to autism. More

Cash crisis Almost 90% of English councils overspent on their budgets for teaching children with special needs last year, and the underfunding is set to continue into 2021. More

Finding out "I’m Autistic. I Didn’t Know Until I Was 27. Autism spectrum disorder is inseparable from who I am. I wish only that it hadn’t taken so long to find out." More

Anorexia and autism linked? In 1983, psychologist Christopher Gillberg posed a provocative question to the readers of the British Journal of Psychiatry: Could autism and anorexia nervosa share underlying causes?​ More

Tech can help "When my son’s speech and language delay was first highlighted, in 2016, there was a negative stigma attached to screen time with children, both for neurotypical and neurodivergent kids. It took a global lockdown to dislodge that viewpoint, and I'm glad that it did". More

Failing health Mental health services need to develop greater sensitivity to the mental health risks in autism. Right now they are failing adolescents and young adults with autism ​. More

Small talk is a big deal Having a casual conversation can be the most stressful part of some people's day. Sheree Somers knows what this feels like and she has some advice for us all to make things better.​ More

See strengths ”Having autism doesn’t mean I don’t have the same goals as you. It means that I am not able to talk and my body doesn’t behave like I want it to.” More

<![CDATA[AUTISM NEWSLETTER NOVEMBER 2020                                  COMMENT]]>Fri, 20 Nov 2020 10:17:09 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-november-2020-commentAutistic and invisible Girls with autism are not being diagnosed because they are adept at camouflaging their behaviour in an effort to try to fit in, according to a new study. More

Reclaiming research for autism "I was diagnosed with Autism Spectrum Disorder at 18 years old. At 18 years old, I began to understand myself. Finally, I understood why I am this way" More

Don't generalise Autistic people vary widely in their quality of life, a new study shows. Some report shortcomings in their physical health and school achievement, among other areas, but many do not. More

Care to spare Autistic people care too much, research suggests. ​A journal article in The Journal of Neuroscience was released last week regarding morality and individual gain, comparing groups of autistic people and non-autistic people More

Low-down on lockdown "The new [national] lockdown measures are causing a lot of anxiety for people like me. It’s difficult to wake up one morning and be told you can’t leave your house or go to school." More

Welcome to the house "I honestly never thought that I would run for office, because I didn't see people in elected office who were like me," Jessica Benham More

Spotting signs Sam Bailey says she felt guilty that she hadn't spotted the signs sooner. "Looking back, he has an issue with loud music and loud noises. A hand dryer in the toilet, he’d be like: 'Agh!'," More

Why the wait? Families are living a 'nightmare' waiting two years for children to get access to autism referrals More

A.I. help for jobs Researchers are collaborating to develop artificial intelligence based software to help people on the autism spectrum find and hold meaningful employment. “We believe that people with disabilities add a needed element to the richness of the American and global workforce,” More]]>
<![CDATA[AUTISM NEWSLETTER OCOBER 2020                                        COMMENT]]>Fri, 23 Oct 2020 08:13:53 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-ocober-2020-commentThrough An Autistic Eye Autistic photographer inspires other young people with special needs to take photos as he prepares to publish debut book  More 

Life in lockdown A mother and son have written an illustrated book during lockdown to help explain autism to others. More

Sounds different Unlike typical toddlers, those with autism may tend not to share experiences involving sound — dancing to music with their parents, for example, or directing a parent’s attention toward a cat’s meow — according to a new study More

Good read Get hold of Sarah Kurchak's ‘autiebiography’ (an autobiography written by an autistic person) which, though it may not reflect the experiences of everyone on the spectrum, is sure to resonate with many More

Getting in the door Being diagnosed with autism at the age of 33 was a watershed moment for Josh McKeiver. - "That was a huge relief. I cried. I'd never cried so much in my life, over days." Employment however is another hurdle. More

Care changes needed Too many people with learning disabilities or autism are receiving "undignified and inhumane care" in specialist hospitals, a care regulator has found. More

Autism in the family "What [autism] means for us, in my family, is that we experience external stimuli as blasts of information. When we are out in public, the smells, the sights, the sounds and the people can all merge together and become completely overwhelming." More
<![CDATA[AUTISM NEWSLETTER SEPTEMBER 2020                                  COMMENT]]>Wed, 16 Sep 2020 09:12:31 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-september-2020-commentAsthma and autism? In the United States, children with autism or other developmental disabilities are at least twice as likely to have asthma as their typically developing peers are, according to a new study More

Ability awareness Listen to Francesca Happé talking to Jim al-Khalili about the abilities of people with autism More

Education frustration Children across the county are now returning to the classrooms following lockdown and summer holidays but it seems that for many autistic youngsters the right provision is not in place More

Word on the street Five years after “Sesame Street” put its focus on autism, new research suggests the show’s materials are helping to change minds More

Diagnostic difficulties What would make screening and diagnosing autism more accurate? A new study found it could be something as simple as listening to parents! More

Jobs to help cure loneliness "It is estimated that 90% of adults on the autism spectrum are unemployed. You might ask, “How could that be?” The answer involves a complex, systemic set of issues, but the reality is clear. Given how hard it has been for us to live life socially isolated since mid-March, I ask you: How would you like to do that for the rest of your life?" More

Autism and gender diversity Autistic people are more likely than neurotypical people to be gender diverse, several studies show, and gender-diverse people are more likely to have autism More

<![CDATA[AUTISM NEWSLETTER AUGUST 2020                                         COMMENT]]>Wed, 26 Aug 2020 11:47:56 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-august-2020-comment
Back to the future An autism support charity As I Am has produced a useful booklet – Bridge Back to School – to help with transition and the difficult re-entry to school for autistic youngsters More

Right person right job support Mark (autism and ADHD) speaks out about his experiences in the workplace and how a charity helped him find a job right for him More

Food and the spectrum Eating disorders in autistic people are poorly understood, but they tend to be more severe and long-lasting. What, if any, is the link? More

Where's the support? More than a quarter of English councils are acting unlawfully by discriminating against children with autism, according to a report by disability law experts More

Don't forget us People with learning disabilities in Oxfordshire say they feel forgotten by the Government when it comes to coronavirus COVID-19. Members of the Oxfordshire self-advocacy charity, My Life My Choice say they feel abandoned. More

Me too The founder of a charity for autistic children and their families is celebrating her own autism diagnosis at age 48. Rachel started Autism Camp Australia to support and provide respite for the families of young autistic people after her daughter was diagnosed at the age seven More

Including me “We can have a diverse workplace, but unless you really have inclusion, meaningful inclusion, where people feel they are welcomed in the workplace, they have a stake in the work, it’s really difficult to retain a qualified workforce.” More

Moving story Most autistic people — 87 percent, according to the latest estimate — have some sort of motor difference or difficulty, ranging from an unusual gait to frustrations with handwriting. So what does the science say? More

Wild passion "My career as a wildlife photographer was born out of my obsession with animals. As a kid, I would spend hours watching documentaries, reading my animal encyclopaedia or researching online" More

Making it as an autistic adult Listen to a podcast “‘Living in Uncertain Times: Coping Strategies for Adults on the Autism Spectrum” with Stephen Shore More

<![CDATA[AUTISM NEWSLETTER JULY 2020                                         COMMENT]]>Mon, 06 Jul 2020 11:10:41 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-july-2020-commentHow to 'see' autism Interview with Temple Grandin: Autism, genetics and "nature versus nurture" More

That's quality What is 'quality of life' for autistic people? It should be defined by autistic people themselves, surely? Thats what the WHO says. How to improve it? Now there's a question More

Getting it wrong Anne Hegerty reveals the biggest misconceptions about autism More

​Canine question Do therapy dogs  help children struggling with social communication? More

Autism, community and Covid-19 “I have to say hello to people,” Ramírez said. “And I have like a certain number, like 30 people, I have to say hello. And so when I'm walking around, I do that with my neighbors. So everybody thinks that I'm really sociable, but I'm actually very introverted. I'm actually really shy.” More

Living the science Growing ranks of researchers on the spectrum are overcoming barriers—from neurotypical bias to sensory sensitivities—to shape autism science More

Mind works School-based mindfulness programs can improve decision-making skills and teach children with autism to focus attention More

Not knowing "I wasn’t diagnosed with Asperger’s until I was about 23 years old and I wish I’d known about it sooner". More

<![CDATA[AUTISM NEWSLETTER MAY 2020                                                 COMMENT]]>Fri, 22 May 2020 10:11:46 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-may-2020-commentResearch needs you University of York researchers need your help with a project looking at experiences of bullying in childhood in autistic adults. More
... why not explore the topic of the role of the autistic voice in research a little further? More

Safe schooling Are schools able to offer safe and suitable provision for autistic children on an individual basis during 'lockdown'? More

Virtual understanding US law enforcement professionals are utilising virtual reality to gain insight into autistic experience. More

Distraction reaction Autistic people may have trouble tuning out distractions. Researchers at Carnegie Mellon University in Pittsburgh believe this may account for some of the problems with sensory sensitivity and sensory processing experienced by individuals on the spectrum. More

Wired for success Auticon, an  IT company, sees the benefits of having a majority-autistic workforce. "Our hybrid onsite and offsite teams utilise the cognitive benefits of autism to provide the sustained concentration and analytical mindset that makes us wired for success". More

Autism advocate In 2017, Daisy Shearer, then a 21-year-old physics major at the University of Surrey in the UK, was diagnosed with autism spectrum disorder (ASD). In retrospect, the diagnosis made sense. It explained the sensory overload and panic attacks during exams, for example, and the trouble she had maintaining friendships. More

Lockdown life Robyn Steward and Jamie Knight, presenters of the podcast '1800 Seconds on Autism', reveal what’s been going on in their lives during lockdown. From the pasta dish Jamie has eaten every day for five years no longer being available at the supermarket, through to Robyn’s solo trip to hospital, a notoriously noisy and discombobulating place.  More

Eating and autism Is there a relationship between eating disorders and autism? Children with autistic traits are more likely than their peers to develop an eating disorder, according to a new UCL-led study. More

Siblings stick together Why not sign up for a free siblings webinar? Siblings, parents, and other caregivers can participate in this series, which will be the 2nd Tuesday each month. Next one is June 9th. More

<![CDATA[AUTISM NEWSLETTER APRIL 2020                                              COMMENT]]>Wed, 22 Apr 2020 09:22:01 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-april-2020-commentWe're hiring. Badly! Read about William's experiences of interviews (and what's wrong with the way most firms do them). A great insight into how autistic job seekers are discriminated against. More

That's right "The rights of persons with autism must be taken into account in efforts to address the COVID-19 coronavirus", UN Secretary-General More

Family and autism "When my son was diagnosed, I was told the condition was hereditary. Suddenly my late mother’s ‘eccentric, bossy’ personality began to make sense" More

Diagnosing 'different' Two women explain the reality of going through life feeling 'different' to their peers but without anyone ever being able to explain why More

Quality improvement required Autistic children and adults report poor physical and mental health and quality of life compared with the general population, according to a new survey More

Finding a different 'normal' "I have been spending so much time trying to force him to be 'normal' — to follow the standard milestones for child development. It never occurred to me to think he was autistic. A month ago I didn’t even really know what that meant." Read one mother's story More

Coping with confinement 11-year-old Elliott gives other autistic kids his lockdown tips More

Trouble with transition Autistic young people  in transition  are more likely to have active medical needs and require a healthcare team that is familiar with autism More

Time to talk When Meta Auden realised her daughter disliked certain fabrics and zips, she began to make bespoke items — and ended up launching her own firm. Talking to her teen during this crisis has also given her invaluable tips for parents More

What planet? The world has lost a great autism advocate, writer and all round wit. PJ Hughes will be sadly missed. Celebrate his life with the book Me and Planet Weirdo More]]>
<![CDATA[AUTISM NEWSLETTER MARCH 2020                                          COMMENT]]>Sat, 21 Mar 2020 11:23:10 GMThttp://positiveaboutautism.co.uk/autism-news/autism-newsletter-march-2020-commentBig noise A new study may explain why people with autism are often highly sensitive to light and noise. More

Diagnosis and me ​"My rule-following autistic brain wouldn’t allow me to think of myself as really autistic until someone officially diagnosed me as such" More

Stop with the stereotyping These days, it seems fashionable to speculate about whether or not someone is on the autistic spectrum. Is this acceptable? More

Socially speaking A number of myths about autistic people abound. It's a great myth that autistic people lack empathy. However, the more you get to know an autistic person, the more you realise just how caring they can be. More

That's accepted We are approaching April, Autism Awareness Month.  Please do not be fooled. Awareness is not the same as acceptance and inclusion. More

Guide to 'me' When Dr Camilla Pang was eight, she asked her mum if there was an instruction manual on how to be a human. She was sick of getting things 'wrong' and being told that her behaviour wasn’t 'normal'. She wanted, above everything, to feel like she fitted in. More

Drawing on autism A teenage autistic author published her new comic to show those with autism they are not alone More

Describing different For artist and writer Charlotte Amelia Poe, 30, every day feels like a walk across a frozen pond. “It’s how it’s always been,” she explains. “You’re trying to navigate it and stay safe, but you’re aware that at any moment the ice is likely to crack, and at that point you will sink into the water.” More

Times of trouble With the current covid19 virus spreading anxiety and uncertainty in the autism community, why not send this newsletter to someone who might just need some positivity right now. Subscription link